|
Elizabeth "Betsy" Mullen is the Founder of
the Women's Information Network Against Breast Cancer™
(WIN ABC), a California-based national nonprofit
organization with offices in San Diego and Los Angeles
counties. Ms. Mullen resides in San Diego, California with
her WIN ABC Co-Founder and husband of twenty-three years,
Ken. Prior to founding WIN Against Breast Cancer, Ms.
Mullen was a Market Research Analyst with a background in
political science, public administration and public
relations. WIN ABC was created to empower breast cancer
patients to become informed partners with their health care
team as they travel through diagnosis, treatment and
recovery with confidence and grace. A second key objective
of the WIN ABC organization is to work with health care
providers and policy-makers to ensure responsible health
care policy, appropriate delivery systems and pathways of
care for breast cancer screening and treatment services and
culturally competent education and psychosocial support for
patients.
Betsy was diagnosed with breast cancer in
1992 at the age of thirty-three. What she learned and
experienced from her personal journey in combating this
disease transformed her from a confused, frightened patient
into an informed patient advocate. Betsy is committed to
using her knowledge and expertise to assist others battling
breast cancer to undergo the same positive transformation.
Since its formal founding in May of 1994, the WIN Against
Breast Cancer organization has served the needs of an
ever-growing number of breast cancer patients, their family
members, health care providers, researchers, public health
officials and policy-makers throughout the United States.
Ms. Mullen and WIN ABC are committed to
ensuring equal access to appropriate, high quality breast
cancer education, screening and treatment services for
individuals from all cultural and socioeconomic
backgrounds. Betsy and WIN ABC have been actively involved
in the establishment of the first breast cancer treatment
fund in the United States for patients at or below 200% of
the federal poverty level (the California Breast Cancer
Treatment Fund) since its inception, helping to raise over
$65 million to date for this benchmark program.
Betsy is a founding member of the California
Breast Cancer Treatment Fund Advisory Council where she
served two terms as Treasurer for this groundbreaking and
vital fund. Ms. Mullen and the WIN ABC organization remain
actively involved in efforts to make this fund a permanent
state funded program and template for federally funded
programs for underserved patients throughout the United
States.
WIN ABC's signature program, the Breast
Buddy Breast Care Program has been identified as a new
best practice by the Commonwealth Fund and the American
Association of Health Plans (AAHP).
Representing over 130 million health plan
members throughout the country, AAHP’s recognition
established the Breast Buddy Program as “an exemplary
practice…an outstanding women’s health program that really
is making a difference in improving women’s health.”
WIN ABC has brought this award-winning program into the
lives of medically indigent and underserved patients in a
successfully completed Los Angeles County based pilot
program at two county run hospitals. The intention is to
facilitate the program's replication throughout the country
as funding permits, to reach medically underserved and
indigent populations historically disconnected from the
comprehensive health care services and psychosocial support
that they so desperately need.
Ms. Mullen and the WIN ABC
organization are also committed to increase funding for
breast cancer research. Their dedication and hard work in
partnership with others resulted in the passage of the Stamp
Out Breast Cancer Act in July 1997 and issuance of the
historic Breast Cancer Research Semipostal Stamp in July
1998. Ms. Mullen was a featured speaker at a special White
House ceremony for the stamp's first day of issuance on July
29, 1998 hosted by First Lady Hillary Rodham Clinton. Ms.
Mullen and WIN ABC also spearheaded efforts that secured
legislation in July 2000, extending the issuance of the
special fundraising stamps for two additional years.
Ms. Mullen again spearheaded a
nationwide effort to extend the stamp’s issuance for two
more years beyond the first extension, working with Congress
to pass a third consecutive piece of legislation, the Breast
Cancer Research Stamp Act of 2001 and helped to secure an
additional extension in January 2004. As a result of these
efforts, over $45 million has been raised to date for breast
cancer research at the National Institutes of Health
and Department of Defense. The awareness raised as a
result of this special stamp designed to save lives
continues to be priceless. Betsy is currently involved in
efforts again underway to secure federal legislation to keep
this historic stamp on the market.
Lifetime Television's series New Attitudes
has highlighted Ms. Mullen and WIN ABC's Breast Buddy Breast
Care Program for Underserved and Indigent Patients. Betsy
has also appeared on the NBC Nightly News to discuss
the importance of breast cancer research and was the subject
of a four-part series produced by the KTLA Morning News
highlighting WIN ABC and the Breast Buddy Program. Betsy
participated in a press conference hosted by the American
Association of Health Plans (AAHP) and the Commonwealth
Fund, held at the National Press Club. The event received
widespread national media and aired live on C-SPAN in August
1998. The event highlighted the AAHP's new Women's Health
Initiative, in which WIN ABC's Breast Buddyâ
Breast Care Program, in partnership with Kaiser Permanente
Southern California, was recognized as a new best practice
of care for patients. Ms. Mullen was honored in January 2004 by San Diego
Magazine naming Betsy as the publication’s "One of 50
People to Watch in 2004". In 2005, Betsy had several
guest appearances on the Emmy-winning show, Starting Over
to share her experience and expertise as a breast cancer
survivor and advocate.
Selected Awards and Honors
- Recipient,
special proclamation issued by Nevada Governor, Kenny C.
Guinn proclaiming Friday, January 28, 2005 “Stitch to WIN
Against Breast Cancer Day” in honor of Ms. Mullen and
the WIN Against Breast Cancer and the National NeedleArts
Association organizations
- Recipient, 2005 Special Certificate of Recognition issued by
Nevada Lieutenant Governor, Lorraine T. Hunt to recognize
the first Stitch to WIN Against Breast Cancer event in the
state of Nevada, in honor of Ms. Mullen and the WIN Against
Breast Cancer and the National NeedleArts Association
organizations
- Recipient,
2004 San Diego Magazine’s 50 People to Watch in 2004
- Recipient, 2000 Women’s Referral Service Lee
Bright Pink Ribbon Award
- Recipient,
2000 National Association for Women’s Health 9th
Annual Award for Excellence in Women’s Health, Award for
Special Service – National Level
- Recipient,
2000 California Health Decisions Informing the Public in
Health Care Choices Award
- Recipient,
2000 Women’s Referral Service Lee Bright Pink Ribbon Award
- Recipient,
1999 Women Making History Award hosted and presented by
United States Senator Barbara Boxer and co-presented by
United States Senator Dianne Feinstein
- Recipient,
1999 California Association of Nonprofits Public Policy
Excellence Award for Communications Excellence
- Special
Recognition, 1999 Kaiser Permanente Vohs Award Dinner: “In
appreciation for your contribution to the successful
implementation of the Breast Buddy Program for our members
and the Breast Cancer Research Stamp for cancer research.”
- Recipient,
1999 Woman of Accomplishment Award, Soroptimist
International of San Diego
- Recipient, the 1999 Soroptimist International
Desert Coast Region's Women Helping Women Award
- Recipient, 1999 Los Angeles County Board of
Supervisors Recognition of Community Service "for
helping empower women with breast cancer… and dedication and
commitment to increase funding for breast cancer research"
Selected Awards and Honors
(continued)
-
Recipient, 1998 Woman of Achievement Award,
YWCA of the San Gabriel Valley; Women's Health Advocate
Award Recipient.
-
Recipient, 1998 Los Angeles County Award of
Merit
-
Recipient, 1998
Los Angeles County Resolution – “Outstanding Advocate for
Women’s Health for Establishment of New National Standard of
Care for Breast Cancer Patients.”
- Recipient, 1998
California State Assembly Certificate of Recognition
- Recipient, 1998
Freeman, Freeman & Smiley Vision in Philanthropy Award --
California Community Foundation Award.
- Recipient,
1998 United States Senate Certificate of Commendation -“Exceptional
Record of Service on behalf of individuals with breast
cancer and her tireless dedication on behalf of the Breast
Cancer Research Stamp”
- Recipient, 1998
City of San Diego Proclamation - naming August 10, 1998,
Breast Cancer Research Stamp Day from the Mayor of San Diego
in honor of Ms. Mullen and the WIN Against Breast Cancer
organization
- Recipient,
1998 San Diego City Council Proclamation -Recognition
of work on behalf of Breast Cancer Research Stamp
- Recipient,
International Public Relations Association/United Nations
Department of Public Information UN: Honorable Mention, 1997
UNDPI Award; IPRA: Recipient, Golden World Award
- Recipient, 1997 United States Public
Relations Association Award of Excellence
- Recipient, Service
Excellence Program/Team Excellence Award, Kaiser Permanente
Inland Empire MSA Breast Buddy Program Team.
- Recipient, Service
Excellence Program/Team Excellence Award, Kaiser Permanente
Inland Empire MSA Women’s Health Event Committee Team.
- "Breast Buddies
-- A Comprehensive Breast Care Program Poster Session”
American Society of Plastic and Reconstructive Surgical
Nurses 1996 Annual Conference; Second Place Award.
Selected Current Societies and
Professional Affiliations
-
British Medical Journal (BMJ) Knowledge
Advisory Board, Member
-
California Association of Nonprofits (CAN),
Member
-
The Greater San Diego Business Association,
Member
-
2005 National Cancer Survivors Day Speakers
Bureau. Member
-
San Diego Chamber of Commerce, Member
About the WIN Against Breast Cancer Organization
The
WIN Against Breast Cancer organization is a caring, open and
welcoming organization sensitive to the differing needs of
individuals from various racial, ethnic, cultural,
socio-economic, age, gender and sexual identity groups.
WIN Against Breast Cancer’s Mission
WIN ABC is dedicated to
increasing public awareness about breast cancer and ensuring
that individuals from all cultural and socioeconomic
backgrounds receive rapid access to quality health care and
state-of-the-art support, education and information about
the disease.
WIN Against Breast Cancer’s Goals
1)
Equip
breast cancer patients with the knowledge and
culturally competent tools necessary to facilitate confident
and informed decisions regarding their treatment options and
overall health care.
2)
Educate patients, their family members and the public
about the importance of self-care, personal health
responsibility and how to partner with their health care
team to receive the comprehensive, quality care and support
they need.
3)
Provide ongoing peer support for breast cancer
patients throughout their diagnosis, decision-making,
treatment and recovery continuum of care.
4)
Collaborate with the health care community,
policymakers and the public to address the complex medical
and psychosocial issues facing breast cancer patients from
all cultural and socioeconomic backgrounds in order to
ensure improved standards of care, improved community
outreach and equal access to quality care for all breast
cancer patients.
Reference Material Featuring WIN ABC, WIN ABC
Programs & Ms. Mullen
(partial
listing)
A Woman's Guide to Breast Cancer Diagnosis
and Treatment,
1996; Published by the state of California Department of
Health Services (CA DHS), Breast Cancer Early Detection
Program; Elizabeth Mullen, consultant to the California DHS;
Author: Resources section of the publication.
Advancing
Women’s Health: Health Plans’ Innovative Programs in Breast
Cancer; Survey Results and Case Studies;
1998; American Association of Health Plans
and HealthPartners Research Foundation; Authors: Felicia B.
Bloom, Sharon J. Rolnick, Kristine K.J. Fortman, and Barbara
D. Lardy.
Be a Survivor: Your Guide to Breast Cancer
Treatment;
1999; Lange Productions; Author: Vladimir Lange, M.D.;
ISBN #: 0-9663610-0-8; and companion video and
interactive CD-ROM. Elizabeth Mullen, consultant to the
author.
Best Practices in Women’s Health: Identifying
Exemplary (Breast Cancer) Care
(“Ten Key Questions Every Woman Can Ask Her Health Care Plan
to Identify Exemplary
Care”);
June 1998; American Association of Health
Plans and the Commonwealth Fund; available on the American
Association of Health Plans website at:
http://www.aahp.org
Breast Cancer: Society Shapes an Epidemic,
2000; St. Martin’s Press; Authors: Anne S. Kasper, Ph.D. and
Susan J. Ferguson, Ph.D.; ISBN #: 0-312-21710-2 (pages
111-112).
Breast Cancer Sourcebook,
2nd edition;
2004; Omnigraphics; Edited by Sandra J. Judd. Charts and
Tables. Index; 595 pages. ISBN #: 0-7808-0668-9.
Confíe en el Mañana: Guia para el Tratamiento
del Cancer de Mama
(Have Faith in Tomorrow: Your Guide to Breast Cancer
Treatment);
1999; Lange
Productions; Author: Vladimir Lange, M.D.; ISBN #:
0-9663610-0-8; and companion video, funded by WIN ABC
through a grant from The California Endowment.
Effective Clinical Practice Journal,
July/August 2000;
Evaluation of a Breast Cancer Patient Information and
Support Program;
2000; Published by the American College of
Physicians-American Society of Internal Medicine; Authors:
Ann M, Geiger, Bradford W. Edgerton, Elizabeth S. Mullen,
Patricia A. Sloman and Diana B. Petitti.
Evaluation of Breast Buddies,
1996; Kaiser Permanente, Southern California Permanente
Medical Group; Authors: Ann Geiger, Ph.D., Diana Petitti,
M.P.H., M.D.
Healthplan
Magazine November/December 2001;
The Breast Cancer Research Stamp: Sticking with a
Great Idea; Breast Buddy Program Offers
Integrated Care, Information, Solace for Indigent Women;
published by the American Association of Health Plans;
Author: Genevieve Belfiglio.
Meeting Psychosocial Needs of Women with
Breast Cancer;
2004; Insitiute of Medicine and National Research Council
of The National Academies Press; National Cancer Policy
Board; Maria Hewitt, Roger Herdman and Jimmie Holland,
Editors; 278 pages, ISBN# 0-309-09129-2 (pages 147-148).
Plastic Surgical Nursing Journal, Fall 1999,
Volume 19, Number 3;
Delivering a Promise: One Woman’s Story of
Partnership and Hope; WIN Against
Breast Cancer Programs; 1999; Published by the
American Society of Plastic and Reconstructive Surgical
Nurses; Author: Elizabeth “Betsy” Mullen.
Understanding Healthcare Quality;
June/July 1999; California Magazine
Roundtable; Editors: Diana Kenney and L. Ann Movalson;
supported by the California HealthCare Foundation.
Women’s Health Concerns Sourcebook,
2nd edition;
2004; Omnigraphics; Edited by Amy L. Sutton. Charts and
Tables. Index.; 746 pages; ISBN #0-7808-0673-5.
For more information regarding the WIN
Against Breast Cancer organization, please feel free to
visit WIN ABC’s award-winning web site at
www.winabc.org |