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Re: LCIS

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Posted by Shelly Blechman on 7/26/2002 from 216.117.218.7:

In reply to: LCIS posted by Diane Dauphin on 7/17/2002 from 172.149.215.254:

Lobular carcinoma in situ can serve as a marker for future cancer risk. There are a number of options that you have. Certainly the most drastic is bilateral mastectomy. Removing the LCIS is not enough as this is not what grows into cancer. Close follow-up is another option that means exams every six months and yearly mammograms (though mammograms are not 100% and frequently, lobular carcinoma does not show up on mammograms). But that way if cancer does develop, it is caught very early. Another option is to take Tamoxifen for up to five years as this has shown to decrease the chance of getting breast cancer by over 50%.

We would be glad to connect you with women who are taking Tamoxifen preventively (or others who are not) and send you information on that as well as genetic testing. Your doctors should be able to connect you with women in their clinic as well with whom you can speak to help you with some of these issues.

In terms of support groups in New York City, there are actually too many to list. I would be glad to send you that information. Perhaps one of them can connect you to a specific type of support group that deals with high-risk individuals.

WIN ABC is here as a resource for you. If you have not done so already, please complete the Personal Profile Form by clicking on the link below as this will help us best meet your needs or contact our office toll free at (866) 2 WIN ABC (294-6222). Your information will be kept confidential.


AN IMPORTANT REMINDER: Please keep in mind that we are not health care providers. Also, it is very difficult to render an opinion without knowing all the facts of any one particular case. One strong recommendation we would like to make is that you pursue your question(s) with your own physicians. You should feel fully empowered to obtain a satisfactory answer and feel free to seek a second or third opinion.

We have some great tips on partnering with your health care team and key questions to ask your doctors, communication tips and informed decision-making tips to help you get the information that you need.


Shelly Blechman
Program Director
WIN Against Breast Cancer

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