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Posted by Betsy Mullen on 11/18/2001 from 24.4.254.66:

In reply to: DCIS posted by Susan on 11/7/2001 from 24.178.250.71:

Dear Susan:


I hope that this message finds you well and would love an update on how you are doing and on your treatment decisions.

If you have not contacted our office directly yet, we have trained information specialists that can speak with you one on one and who can determine tour needs and the best materials to send you (all free of charge). You are more than welcome to call us toll free at (866) 2 WIN ABC.

You are also welcome, if you have not done so already, to fill out the special Personal Profile Form (blue link at the top of this page) with your specific information and with requests for some of the information and resources I have outlined below. All of your personal information will remain confidential.

We will be happy to send you educational materials, free of charge regarding breast anatomy, questions to ask your health plan about exemplary care (found on our web site under help yourself – 10 key questions for women to ask their health plans), questions to ask your doctor about breast cancer, a video about tamoxifen and more depending upon your individual needs. We do not charge for any of our services.

In addition, WIN Against Breast Cancer has published a very extensive Breast Health/Breast Cancer Resource Guide. We will be delighted to send these materials to you (all of which are free of charge to patients and the public).


ADDITIONARESOURCES TO HELP YOU

There is a great book out entitled "Be a Survivor" written by Vladimir Lange, M.D. My plastic surgeon and I served as consultants on the project (there is also a corresponding video and interactive CD-ROM). There are full color pictures including my breast reconstruction in the book, video and CD-ROM, as well as description of the various reconstructive surgical procedures and all major breast cancer types, stages, treatments and other important information. You can purchase the book through our site’s bookstore.

Additional good books include Dr. Susan Loves’s Breast Book, third edition which comprehensively covers breast health and breast cancer; and "A Woman’s Decision" which extensively covers breast cancer and reconstruction which are also highlighted in our "virtual bookstore". The books can be purchased on line in our virtual bookstore via Amazon.com. Another good book is entitled "The Road to Immunity: How to Survive and Thrive in a Toxic World" by Kenneth Bock, MD and Nellie Sabin. It covers in depth information about the immune system and how to keep our immune systems functioning at peak capacity.


AN IMPORTANT REMINDER:

It is very difficult to render an opinion without knowing all the facts of any one particular case. But one strong recommendation we would like to make is that patients pursue their question(s) with their own physicians. Everyone should feel fully empowered to obtain a satisfactory answer and feel free to seek a second or third opinion. We have some great tips on partnering with your health care team and key questions to ask your doctors, communication tips and informed decision-making tips to help patients get the information that they need.

Susan, I will close with this thought and a saying of mine: "When in doubt, check it out." We each know our bodies well and are our own best advocates. We all need to pursue any concerns with our health care team. Also, we are strong advocates of second opinions.

I will be holding you in my thoughts and hope that you contact us directly.


My warmest personal regards,
Betsy

Elizabeth ("Betsy") Mullen
Founder, President/CEO
WIN Against Breast Cancer
Main Office:
536 S. Second Avenue, Suite K
Covina, California 91723
Telephone: 626-332-2255 Fax: 626-332-2585
San Diego Office:
Telephone: (619) 284-4900 Fax: (619) 284-7900
Web Site: www.winabc.org

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